Thursday, November 13, 2014

Dealing with cancer-related fatigue


One of the aspects of batting my Stage 4 liver cancer that is concerning me most is wondering if my ongoing chemotherapy is making a dent in destroying my tumors.  Dealing with the situation leads to an emotional rollercoaster. 

 Research suggests that most people getting cancer treatment have fatigue. Cancer-related fatigue is very different from everyday fatigue. Cancer-related fatigue is worse. It lasts longer and sleep doesn’t make it better: it’s unpredictable. And many people describe it as overwhelming, affecting every part of their lives.

During my previous colon cancer episode a couple of years ago along with my stroke in 2006, I prided myself in battling with a “one day at a time” attitude. For some reason it has been much more difficult in maintaining that positive attitude.  Bottom line – I’m scared.

One of the things that have carried me in the past has been my association with UW-Whitewater football that dates back to 1988.  As the radio play-by-play voice of Warhawk football followed by being publisher of my warhawkfootball.com website much of my energy has revolved around my interest in UW-Whitewater football.

The defending national champion Warhawks are currently ranked No. 1 in the country and will wrap up an undefeated regular season with a win on Saturday at UW-River Falls.  I should be really excited, but maybe it’s the fatigue and depression I’m currently experiencing that has limited this season’s passion.

Cancer-related fatigue can last from months to years, and continues after treatment ends, too. Many people with cancer say fatigue is the most distressing side effect of cancer and its treatment.

Saturday, November 8, 2014

Additional Info On Liver Cancer Signs Symptoms Support


Simply put, any cancer that begins in the cells of the liver is called liver cancer. There are several different types of liver cancer, however, and the type of cancer depends on where in the liver the cancer starts. Hepatocellular carcinoma, which begins in the hepatocyte cells, is the most common type of liver cancer. Other types of liver cancer are much more rare. When liver cancer is diagnosed, your doctor will determine which type of liver cancer you have.

Liver cancer is most commonly seen in individuals who have chronic liver infections, such as hepatitis B or hepatitis C, have cirrhosis, non-fatty liver disease or other liver diseases and drink excessively for long periods of time. Diabetes and obesity are also known risk factors for liver disease. Rarely, exposure to aflatoxins, poisonous molds that grow on improperly stored crops, can also cause liver cancer. It's important to keep in mind, however, that having risk factors does not necessarily mean you'll develop liver cancer. If you're considered high risk, talk to your doctor about ways you might be able to lower your risk.

Liver cancer does not produce signs and symptoms in the early stages, making early detection and treatment difficult. When symptoms do appear, they usually include unexplained weight loss, yellowing of the skin and eyes (jaundice), white or chalky stools, weakness and fatigue, upper abdominal pain and swelling and loss of appetite. If you experience any of the symptoms of liver cancer, you should talk to your doctor as soon as possible, so an accurate diagnosis can be made and treatment can begin right away.

If liver cancer is suspected, your doctor will run a series of medical tests to determine whether or not your symptoms are caused by liver cancer. These tests may include blood and imaging tests, as well as biopsies for testing liver tissue. If cancer cells are found, your doctor may need to run additional tests to determine which stage your liver cancer is in, as well as what your options for treatment may be.

Once a full diagnosis is made, your doctor will work with you and a team of specialists to decide on the best course of treatment. It's important that you ask any questions you may have about your treatment options, and work with your doctor as a team to come up with treatments that work well for you. Treatments for liver cancer may include chemotherapy, radiation therapy, embolization techniques (such as chemoembolization, in which chemo is injected directly into the liver) and surgery. Your doctor may also determine whether you should be considered for a liver transplant, if necessary.

Early detection and treatment of liver cancer offers the best chance at a successful recover. The farther the cancer progresses, the more difficult it becomes to treat. In more advanced stages, treatment may focus more on making you more comfortable and extending life, rather than trying to remove or eradicate the cancer.

Thursday, November 6, 2014

Concern over my progress in my battle vs. stage 4 liver cancer

Today I am heading back to the VA in Madison to have my CADD chemo pump removed concluding 46 hours of chemo infusion over the past three days.

 I entered my fourth chemo treatment with some significant concern from my oncologist, Ticiana A. Leal, MD.

 The biggest concern centers around an unforeseen 10 lb. weight loss over the past two weeks.  The other concern stems from the difficulty in dealing with chemo.  Excessive fatigue, nausea and vomiting tops the list..  I was prescribed additional medicine to deal with the situation earlier this week.  It seems to be working well.

 As far as dealing with the weight loss issue, Dr. Leal wants me to eat more despite nausea.  I had my first restaurant meal in the past month on Tuesday… Pasta with salad and cheddar rolls.  I have also been filling myself on soups, noodles, yogurt, and pudding on nearly a continuous basis in a bid to increase my weight. I’ll find out the results this afternoon.

 The excessive weight loss issue rocked me for the first 24 hours. After lengthy telephone conversations with my daughter’s Aimee and Kim the past couple of days that “fighting attitude” has returned for me.

 As the saying goes… Having a rough morning?  Place your hand over your heart. Feel that?  That’s called purpose.  Your alive for a purpose. Don’t give up.

Tuesday, October 28, 2014

Watching a videofluoroscopic swallow study done (VFSS).

My swallow study on Tuesday allowed doctors to analyze my swallowing. The videofluoroscopic swallow study done (VFSS). The procedure included putting barium in different consistencies of food and take an x-ray movie of you swallowing. The attached is a video a similar dysphagia evaluation to the one I had performed Tuesday

 
 

Please donate to a fund drive for Trey Bell who is battling Non Hodgkin's Lymphoma.

On September 12th, 2014 Trey Bell went to the doctor because of a cough that wouldn't go away. The doctors then tell Trey that he has a mass covering his heart and it was cancer!

A 33 year old father to three beautiful children, Alana 13, Sarina 7, and Devin 5, and loving husband to Lea of 3 years and HS sweethearts for 16 years now in a fight to beat Non Hodgkin's Lymphoma.

Most remember Trey from being a UW-Whitewater graduate, All-American football player, 1st ever Hula Bowl  (D1 All-Star game) from WIAC participant, and Arena Football player.  His exceptional skills, love for his teammates, and ability to lead has led to new paths.

There is a time-honored tradition within the Warhawk football family - Once A Warhawk, Always A Warhawk.

One of Trey's former teammates, Jim Leszczynski, has started a fund drive for Trey. Jim seeded the fund raising with a $100 check.

I ask that you consider donating by clicking onto the following Website:

http://www.gofundme.com/fh6s0s?fb_action_ids=10100852017497593&fb_action_types=og.shares

Today's testing was difficult to swallow


In the time between chemotherapy cycles my doctors took a look today why I’ve been having extreme difficulty swallowing which has been a problem for me for the past several months.

 You may have already had a swallowing test with a speech-language pathologist, also called an SLP. During this test you may have tried different foods and liquids. The SLP may have checked how well you can move the muscles of your mouth and how clearly you talk.

Sometimes the SLP needs even more information about how you swallow. You may need another swallowing test - this time in the radiology, or x-ray, department.
Today’s testing included:
§                         videofluoroscopic swallowing study, or videofluoroscopy
§                         modified barium swallow, or MBS
§                         esophagram
§                         cookie swallow
I wore a purple Warhawk football sweater. I left the testing with my sweater caked in barium.

I was a demanding couple of hours.  I’m back home tonight.

Back to The VA in Madison tomorrow where a dental team will study why chemotherapy continues to destroy my teeth.

http://www.asha.org/public/speech/swallowing/Videofluoroscopic-Swallowing-Study/

Sunday, October 26, 2014

Getting set for heavy duty cycle of chemotherapy

It is time for me to get back on my horse and get some blog posts posted.

 My last post was on Oct. 13 when I talked about staying strong while going through chemotherapy.

 I have now gone through my first two cycles of chemo. The stress on my body has been much greater than it was during my colon cancer 18 months ago.

 My chemo treatment for my stage 4 liver cancer got underway and takes place every two weeks (Tuesday and Wednesday) with 44 hours of chemo delivered into my body by way of a CADD pump computer.. The drug used has been Fluorouracil (5-FU)

I’ve been dealing with a number of side effects which has made this cancer fight extremely challenging. I’m dealing with:

  • nausea*
  • vomiting*
  • poor appetite
  • sores in mouth, lips, or throat*
  • low white blood cell count with increased risk of infection*
  • low platelet count with increased risk of bleeding*
  • darkening of skin and nail beds
  • diarrhea

A new, more potent chemo drug will begin for me next week. I’ve already been told this new drug will be very difficult on my body. 

I must be strong!!!

Monday, October 13, 2014

I must stay CANCER STRONG in dealing with this horrible disease

I was told going in that the side effects dealing with chemotherapy this time around would be more troublesome than my colon cancer chemo treatments two years ago.

The prognosis was “right on.”

 My chemo treatment for my stage 4 liver cancer got underway last week (Tuesday and Wednesday) with 44 hours of chemo delivered into my body by way of a CADD pump computer.

 Dealing with chemotherapy is a fulltime job.  If you don’t treat it that way it will take over your mind and body.

 The just concluded weekend certainly tested my will.

 I dealt with pain, nausea and vomiting, fever, chills, sores in my mouth and throat, dry hacking cough, cancer-related fatigue.

 I must stay “cancer strong!”

 I must admit I cry uncontrollably when I view Jim Volcano delivering his memorable speech at the 1993 ESPY telecast… 

Thursday, October 9, 2014

I've now moved into phase 2 in my fight vs. liver cancer

Sorry for missing the past couple of days of blogging. It definitely been an "adjustment week" for me!

I have now moved into phase 2 in my fight vs. liver cancer. I had a surgical procedure Tuesday morning followed by the start of my first cycle of chemotherapy getting underway. It has been a tough body adjustment.  That first 24 hours was difficult as I woke up at 2 AM Wednesday and couldn’t get back to sleep.

Last night was much better. Back to Madison today to make sure my CADD chemo infusion computer is acting probably.

Success of my chemo will determine if doctors will be forced to remove a portion of my liver. Day at a time!!

Monday, October 6, 2014

Treyton Kilar's Field of Dreams grand opening tugs at one's heart strings


 When you are in the middle of battling cancer any good news is very much welcomed.  I received a heavy dose of good news on Saturday. Yes, the No. 1 ranked UW-Whitewater football team rolled over archrival UW-La Crosse in front of nearly 11,000 at Perkins Stadium.

 The best news of the day though happened just over the hill from the “Perk” where a dream of Mary and Mike Kilar held its grand opening on the northern edge of Whitewater's Starin Park.

 The Field of Dreams has been built in memory of Treyton Kilar, a 6-year-old boy who was killed when his family’s vehicle was struck by a drunken driver on Sept. 2, 2010. The Whitewater youth, an avid baseball player, was a first-grader at St. John the Baptist Catholic School in Jefferson.

 The youth baseball field honors Treyton Kilar, a boy whose dream was to someday play major league baseball. But Mary and Mike's 6-year-old son was killed Sept. 2, 2010, in a crash involving a drunk driver.

 “Treyton is looking down on us from heaven and watching all of his friends have a chance to play on something that he would have absolutely loved playing on,” Mary said.

 In the past four years, the Kilars have been overwhelmed by the emotional and financial support of community members; the city council, the Milwaukee Brewers, and area businesses that have helped make the field a reality. Multiple fundraisers have included kickball and dodge ball tournaments, "Run for Trey" races and donations. These efforts have resulted in more than $710,000 toward the project's $900,000 goal.

Friday, October 3, 2014

I’m certainly not alone battling this terrible disease


One aspect of cancer that I learned quickly is the fact that I’m certainly not alone battling this terrible disease. 

Former UW-Whitewater All-American cornerback Trey Bell was recently diagnosed with lymphatic cancer. He has been at St. Lukes Hospital in Milwaukee all week for chemotherapy treatment. Trey is positive and focusing with a one day at a time attitude. He is scheduled to get out of the hospital this afternoon.

I posted this information on Twitter late yesterday afternoon. Within six hours a large number of former UWW teammates posted messages to Trey.

Once a Warhawk – Always a Warhawk!

 

 

Thursday, October 2, 2014

Trying to stay as normal as possible

Emotionally, Tuesday was a very good day.  The day started by joining Bob Berezowitz, Pike Teipner and Claude Miller on our “every three week” trip to Madison for lunch at the Avenue Bar. The day always includes plenty of Whitewater conversation. It is always one of my favorite days each month.

 Tuesday night I attended my first UW-Whitewater Quarterback Club meeting of the season at Saxes Lone Star Inn.  Big crowd – very inspiring! 

 Maybe it is due to the fact that a lot has been going through my mind the past several weeks – but with the large crowd the noise factor really tired me out. The evening was very tiring but extremely enjoyable. The meatloaf was fantastic!!!

 Hopefully my busy day Tuesday will help me get stronger physically in advance of the start of my chemotherapy treatments next week.

 One thing for sure – with all the football talk on Tuesday I am very fired up to be at Perkins Stadium on Saturday when the Warhawks play host to UW-La Crosse in the WIAC opener.

Wednesday, October 1, 2014

Getting set for the start of chemotherapy

It spent Tuesday afternoon at the Veterans Hospital in Madison meeting with my oncologist and Palliative Care team relating to my recently diagnosed Stage 4 liver cancer.

 Joined by my daughter Kimberlee and son-in-law Christopher, Dr. Leal further explained her dianosis and allowed us to view the Pet-Scan photos of the tumors in my liver.   

 She talked about the importance of starting my chemotherapy treatments.

 Next up will be a procedure to surgically place a a “port” in my chest.

 During cancer treatment, my health care team needs access to my veins to give my treatments including chemotherapy, blood transfusions, antibiotics, or intravenous (IV) fluids. They will also need to take frequent samples of my blood for testing. To make these procedures easier, Dr. Lean  ordered the insertion of a special medical device inside my chest.

 The procedure is scheduled for Tuesday morning with my chemotherapy to begin Tuesday afternoon.

 One day at a time!

Monday, September 29, 2014

Thank God for the kids!

One of the aspects that come along with a 62 year old dad suffering from cancer is the feeling that “dad” is no longer as strong as he should be as part of his family.  I had a long chat with one of my daughters last night and as we were talking the words to Harry Chapin’s Cat’s in the Cradle entered my head. The 1974 song written by Harry and his wife Sandy have long tugged on my heart.  Here is a sample of the lyrics that focus on a fathers love for his son (in my case, a daughter).  The following is an excerpt from the lyrics….

 My son turned ten just the other day
He said, "Thanks for the ball, Dad, come on let's play
can you teach me to throw", I said "Not today
I got a lot to do", he said, "That's ok
And he walked away but his smile never dimmed
And said, "I'm gonna be like him, yeah
You know I'm gonna be like him"

And the cat's in the cradle and the silver spoon
Little boy blue and the man on the moon
When you comin' home, Dad
I don't know when, but we'll get together then
You know we'll have a good time then

Well, he came from college just the other day
So much like a man I just had to say
"Son, I'm proud of you, can you sit for a while"
He shook his head and said with a smile
"What I'd really like, Dad, is to borrow the car keys
See you later, can I have them please"

And the cat's in the cradle and the silver spoon
Little boy blue and the man on the moon
When you comin' home son
I don't know when, but we'll get together then, Dad
You know we'll have a good time then

I've long since retired, my son's moved away
I called him up just the other day
I said, "I'd like to see you if you don't mind"
He said, "I'd love to, Dad, if I can find the time
You see my new job's a hassle and kids have the flu
But it's sure nice talking to you, Dad
It's been sure nice talking to you"

And as I hung up the phone it occurred to me
He'd grown up just like me
My boy was just like me

 I’m so proud of my daughters. They are absolutely my “rock.”

 To listen to the song click on the following link…

Saturday, September 27, 2014

Must stay positive, strong, live within the moment, and focus one day at a time are keys to my fight vs. cancer


One of the most important aspects of taking on cancer is being strong both mentally and emotionally. My psychologist stressed to me last week that one’s state of mind can have a huge effect on how your body responds to the weeks of chemotherapy that I’ll be living with over the next few months. She has given me the book Mindfulness For Beginners.  The author is Ion Kabat-Zinn talks about the importance of living in the moment.

 A lot of strange stuff goes on while fighting cancer. Worrying about one’s life expectancy, knowing that chemotherapy treatments are extremely tough on the body and sap most of one’s strength, staying positive even though your body is saying why. 

 I have already read the book twice!  My mission  over the next several months is to stop worrying about what may happen in the future and to focus on living within the moment.  Beating cancer is not a 100 yard dash – it is a marathon.

 As I attempted to do a couple of years ago during my bout with colon cancer – I focused hard at staying positive and to make sure I keep humor important to me.  I’m going to beat this terrible disease one day at a time!!!

Parise family embraces life's good moments during tough times


(The following story written by Michael Russo appeared in the Minneapolis Tribune on Sept. 27, 2014)
 
Zach Parise is one of the bright young stars in the National Hockey League. Parise stars for the Minnesota Wild. His father also called Minneota home during his playing career in the late 1960’s and ‘70’s. J.P. Parise played nine seasons for the North Stars in the early years of the former expansion team in the NHL. J.P. was one of the toughest players in the history of the North Stars which just happened to be my favorite team growing up in western Wisconsin.

With his son starring in the NHL, the elder Parise is currently waging the toughest battle of his life.

For the past seven months, The day before Zach was return from last the 2014 Winter Olympic Games in Sochi, Russia. Zach’s mother Donna gave the news to her son.
 
According to Zach, the doctor gave Dad two years. After he was diagnosed, my mom got in the car crying and he said, ‘Donna, if I’ve got two years to live, I can’t sit here and watch you cry every day. This is just life. This is how it’s going to be.’
The elder Parise has his good days and bad days while battling every day. He has needed to be hospitalized at times over the past several months due to losing his strength and stamina
 
“I am not complaining.” J.P. tells the Minneapolis Tribune, “At the end of the day,  I am still alive, and tomorrow I will still be alive. I am not dying tomorrow. How long this will last, I don’t know. It depends on my attitude, it depends on nature, it depends on how I attack it.”
 

 


 

Friday, September 26, 2014

Some good news on the cancer front

I just got off the phone with my oncologist, Dr. Leal, at the Veterans Hospital in Madison.  She called to tell me that the tests taken last week indicate the cancer HAS NOT SPREAD INTO MY LUNGS.  I am scheduled to meet with her on Tuesday at 2:30 PM where she will discuss a schedule for my upcoming regiment of chemotherapy treatment to my recently diagnosed stage 4 liver cancer.  On Tuesday she’ll talk to me about the port I'm scheduled to have inserted into my chest.

 

Thursday, September 25, 2014

September 25 Tough emotional day today


Got word today that I’ll get the final diagnosis and how my disease will be treated when I meet with my oncology team early next week.  I’ll be the first to admit that I am scared.  Former Buffalo Bills all-pro quarterback Jim Kelly and former Boston Red Sox pitcher Curt Schilling talked recently about their current battles vs. cancer. Both admitted in ESPN interviews that fear was just part of the many emotions for them on a daily basis. I’ll be given my treatment plan and initial life expectancy from my oncology team on Tuesday.  I must stay positive!

 The following lyrics are from Lee Ann Womack’s 2000 hit  “I hope you dance" written by Mark D. Sanders and Tia Sillers….

Time is a wheel in constant motion always rolling us along
I hope you dance
I hope you dance
(Tell me who wants to look back on their years and wonder, where those years have gone?)

I hope you still feel small when you stand beside the ocean
Whenever one door closes I hope one more opens
Promise me that you'll give faith a fighting chance
And when you get the choice to sit it out or dance

SVP and Russillo give love to Warhawks and DIII football on ESPN Radio


I’m listening to my favorite ESPN Radio Show this afternoon.  

Scott Van Pelt and Ryen Russillo just spent a couple of minutes talking NCAA III football. Teams mentioned were Mount Union, Mary Hardin-Baylor and No. 1 ranked, and defending nation champ, UW-Whitewater. Up next – maybe a full segment on the Warhawk football?   Time to rock the social networks and lobby Van Pelt and Russillo to give more love to Division III.  

Unbeaten Warhawks are off on Saturday

 
The UW-Whitewater football team is listed as a prohibitive favorite over BYE on Saturday!  In all seriousness, the Hawks are off on Saturday prior to opening the conference season on Oct. 4 vs. UW-La Crosse in the WIAC opener at Perkins Stadium.

 Just one conference team will be in action Saturday. UW-Stevens Point (2-0) plays host to 5th ranked North Central in nonconference action  at Community Stadium at Goerke Park.  NCC is coming off a solid 28-7 victory over 7th ranked UW-Platteville in Naperville, Ill. last Saturday.  

 The Warhawks join six other WIAC teams taking advantage of a Bye week on Saturday

 

Looking forward to the opportunity to doing some writing on Warhawkfootball.com


Warhawkfootball.com publisher Jay Perkins and I have been talking the past few days. Nothing official yet but I may be doing a weekly column on Jay’s Website where I will take on a variety of Warhawk football topics. I’m very excited!

Wednesday, September 24, 2014

Voices battle vs. cancer with family, friends and football blog now online

I’m about five hours late but finally I have been able to launch Voice's battle vs. cancer with family, friends and football blog. I spent much of the day dealing with a number of issues involving formatting and allowing photos to accompany each post. Those problems will be rectified on Thursday. Beginning Thursday my blog entries will be much more personal as I allow you “inside the mind” of a cancer patient and Warhawk football insider!

Watching the Warhawk football team will be a key aspect in my current battle with liver cancer


As was the case, following my stroke in October 2006 and my colon cancer recovery in 2012-13, my doctors stressed the importance of staying positive and focus one day at a time.  My medical teams learned quickly that the UW-Whitewater football team was extremely important to me emotionally. As far as my current battle is concerned my Palliative care team is suggesting that attend a Warhawk football practice one or two times a week and sit in the press box each home game and write stories just like I’ve done every year since 1988. Hopefully the Hawk coaching staff and UW-Whitewater sports information director Chris Lindeke will allow me the access.

My cancer treatment game plan will include plenty of teamwork

I not only have an oncologist taking care of me at the veteran’s hospital in Madison. I also have the services of a Palliative care team consisting of a team of specialists including physician, nurses, social workers, chaplains and mental health providers.

Palliative care not only focuses on relieving physical symptoms of illness such as pain, but also addresses the social, emotional and spiritual needs that I may require along with family. I meet with both my oncologist and my Palliative care team.  I look forward to make many trips to Madison over the next few months. 

My Cancer Has Returned



Hello again everybody. I'm Tom Pattison and I was diagnosed on September 10th with stage-four liver cancer. The diagnosis comes just one year after having my 13 month battle with colon cancer determined to have fallen into remission.

 I might be down but not out. I want to make a difference as I go through this latest medical dilemma. This blog is intended to convey my thoughts and stories of my journey along my winding road that my life will undergo in the coming months.  I intend to have my posts in a “diary” format.

 It is very scary when you’re dealing with the big-C. I’m hoping that this blog might allow others to better understand the ups and downs dealing with the disease.

Getting ready for Chemo and Radiation

Well, here I go again. It was confirmed in early September that my cancer has returned. This time the diagnosis is Stage 4 inoperable
liver cancer.  Chemotherapy and Radiation treatments will begin next week. Many wondered during my battle with colon cancer why I didn't lose my hair.  My doctors told me earlier this week that I won't be as fortunate this time around. Lucky I own plenty of UW-Whitewater hats!!!   Despite the seriousness of my current diagnosis, my motto remains One day at a time!!